Well, here it is: our first blog post for our brand new SEAC website. How exciting! I’ve been waiting for this day, when we could roll out this organization to the community, and begin to offer comprehensive and effective services to families, for many years.

When my son first was diagnosed with a chromosomal disorder in 2001, I thought my world had ended. I was angry. I was frightened. I was incredibly sad for my son’s older brother. I was jealous of my friends who had neurotypical toddlers who were thriving and laughing and starting to walk and talk. Truth be told, I was a mess.

If you’re a parent reading this, you get it. I’ve always maintained that on this journey, the period leading up to diagnosis, and receiving a diagnosis for your child, are the hardest, most painful parts. For me, during the agonizing months leading up to my son’s diagnosis, I experienced despair, fear and worry unlike any I had ever known.

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